Monday, 15 July 2013 19:26

When you have a moment...

There have been many moments in this past year where I have received a random phone call, text message or email saying “When you have a moment can we chat?” It seems that when those around you learn you have worked in oncology for many years, the request for information never ends. That is why I love oncology and education so very much. However, with that come challenges. Being a resource for co-workers diagnosed with breast cancer has become all too common for me recently. Thinking about survivorship and how Pink Ribbon Survivor’s Network has helped provide tools and information for those I care about has been essential to me in being a resource for others.

Published in Pink Ribbon Blog
Monday, 01 July 2013 18:07

Yoga

Exercise may be the furthest thing on the minds of women with breast cancer but many studies have shown that exercise can improve quality of life, cardio fitness, physical functioning and fatigue in breast cancer patients and survivors.

Published in Pink Ribbon Blog

Watching the local news this past month and reading entertainment magazines has given me much food for thought, as it relates to breast cancer survivorship. This past month, actress Angelina Jolie revealed that she had had a prophylactic double mastectomy. She made this very difficult and ethical decision based on a genetic test (BRCA1) that indicated that would be at a high risk for developing breast cancer (87% chance) or ovarian cancer (54% chance). Angelina Jolie has a strong family history of both breast cancer and ovarian cancer. Another recent story on CBS news was related to breast (BRCA) gene mutations that are more common in black women with breast cancer. There was a study presented at the American Society of Clinical Oncology conference in Chicago this past week that found one-fifth of these women have genetic (BRCA) mutations.

Published in Pink Ribbon Blog

What a wonderful experience it was to be a part of the Oncology Nursing Society national conference in April. Traveling to Washington D.C. to be a part of the festivities surrounding the annual conference was invigorating and educational. Sharing time with other oncology nurses throughout the nation provided me with an opportunity to network with them about current issues and trends in oncology nursing. The focus continues to be ways to provide the best quality of patient care possible.

Published in Pink Ribbon Blog
Wednesday, 24 April 2013 21:08

Cancer Leadership Council

The CLC provides a forum for discussion and advocacy on issues related to cancer health policy from the patient/survivor perspective.

Published in Resource Directory

I wanted to write a blog today about a huge topic that continues to come up for my patients on a regular basis.  That is how to manage work, treatment and survivorship.  I am often asked by patients about FMLA, short term disability, how to afford to pay bills when they are in treatment and can’t work…… and many other issues related to juggling work, cancer, treatment and survivorship.   

I wanted to write a blog today about a huge topic that continues to come up for my patients on a regular basis.  That is how to manage work, treatment and survivorship.  I am often asked by patients about FMLA, short term disability, how to afford to pay bills when they are in treatment and can’t work…… and many other issues related to juggling work, cancer, treatment and survivorship.   Some patients have had the option of using some short or long term disability or FMLA and find that they have many overwhelming feelings, questions and concerns regarding what is available, how to access it and their rights as an employee.  Many professionals, including social workers, want information to be able to address these needs more effectively.   

There are many wonderful resources that can provide insights and information.  They are easily accessed through visiting the Pink Ribbon Survivors Network Resource Directory.  Cancerandcareers.org. is one really helpful resource that you can link to from this site (another is Cancer Legal Resource). You can get accurate information on legal rights for employees, learn the facts about FMLA, and the American Disabilities Act and sign up for seminars.  Experts offer tips on how to speak with your employer, what types of information to share with them and when, as well as tips on effectively managing your emotions and dealing with stress. 

It is great, not only for survivors, but for professionals as well.  In fact, I just participated in a very informative webinar sponsored by their site (and I will receive CEUs for this too). I would highly recommend a visit to our Resource Directory where you can connect with this website and other very helpful sites.  There is a lot of information out there for you to tap into.

Published in Pink Ribbon Blog
Thursday, 11 April 2013 21:01

Reconnecting With Primary Care

During cancer treatment, patients and families become used to seeing their oncologist for most of their healthcare needs. Once treatment is complete, oncologists will usually send updates or a treatment summary and care plan to their patient’s primary care provider (for more on that – check out this blog post). Reconnecting with primary care is important because breast cancer survivors are at risk for ongoing morbidity and mortality from other causes (including second cancers), with common modifiable risk factors.

Published in Pink Ribbon Blog
Monday, 08 April 2013 13:32

Cancer Forward

CancerForward™ is a nonprofit organization dedicated to connecting, educating and sharing information among cancer survivors, empowering them to move forward with their lives. By providing a virtual venue, they support cancer patients, their friends, family and caregivers – all considered survivors – from the time of diagnosis, through treatment and beyond.

Published in Resource Directory
Wednesday, 03 April 2013 15:55

Cure Magazine

CURE is a free cancer magazine that focuses on treatment updates, psychosocial issues, survivorship, and advocacy.

Published in Resource Directory
Monday, 01 April 2013 16:20

Navigating Cancer Survivorship

Navigating Cancer Survivorship (NCS) is a national, nonprofit organization that provides education and resources on the entire continuum of cancer survivorship issues to survivors, caregivers, and healthcare professionals.

Published in Resource Directory
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