Pink Ribbon Blog

     In this first blog posting of the Pink Ribbon Survivors Network, I have collected my thoughts as to five themes that can explain why we have started this website and our motivation for its success.

        1.)  Online learning certainly represents the future of dissemination of information in our society.  Thus we set out to create three online libraries dedicated to issues of breast cancer survivorship from three separate perspectives:  the survivor, the primary healthcare provider, and the cancer care professional.

        2.)  Our project makes the assumption that interested, educated persons with issues, a mission in mind, or just curiosity, will pursue self-directed education.  In an open society, persons don't want to be given simple answers, but want to learn for themselves.  Our project believes that persons will pursue self-directed education, therefore our task is the organized assembly of three online libraries devoted to these three groups interested in learning more about breast cancer survivorship.

        3.) We have observed that the different cancer care professionals ( doctors, nurses, nurse navigators, and social workers) each maintain separate clinical literature.  This isolates each professional group's observations into separate "information silos," which are not shared for a common goal of serving breast cancer survivors.  Therefore, we have created an inter-disciplinary clinical library of breast cancer survivorship issues by drawing from the literature of these different cancer care professions.  We believe that a "synergy of ideas" will be possible when observations from the perspective of different cancer care disciplines are housed on a single online library resource.  

        4.)  It is clear that an organized breast cancer survivorship library for primary health care providers needs to be available.  We note the increasing complexity of medical and psychosocial issues regarding breast cancer survivorship.  Additionally, we recognize that oncology professionals will be transitioning more care of breast cancer survivors to their primary care colleagues.  Therefore, our goal is to create a concise and comprehensive online survivorship library for the primary health care provider.  Standards of follow up care, and nationally recognized Guidelines will be an important feature of this library.

       5.)  We wish to provide a service to society as professionals and community activitists in a non-profit organization.  We pledge to avoid bias in our information, to prevent commercial interests from influencing our content, and to protect our users  from solicitation.  At a time when women play a central role in individual families and in society in general, we recognize the importance of improving the lives of breast cancer survivors through online education.

       Thank you for being part of this project through your use of this online resource.

Rob Fisher, MD  Co-Founder and  Organizational President, The Pink Ribbon Survivors Network (Rob@PinkRibbonSurvivorsNetwork.org), February, 2013.

          


We Thank the CAN'D AID Foundation

     The CAN'D Aid Foundation, based in Longmont, Colorado is a unique and award winning foundation that looks to support local Colorado non-profit organizations that show a can-do spirit.  When major flooding struck northern Colorado in September, 2013, the CAN'D Aid Foundation was instrumental in providing local communities with financial relief for their devastating losses. 

    

Yoga on the Steps

Living Beyond Breast Cancer (www.LBBC.org) will sponsor "Yoga on the Steps" at Cheesman Park Pavillion in central Denver on Saturday, September 13, 2014 at 9 AM.  This event will be a great intro to yoga or an oppportunity to improve your skills, joined by several hundred participants sure to energize the experience of raising money and awareness for breast cancer in an outdoor venue.  To learn more and to register, visit www.LBBC.org and visit the events section of Living Beyond Breast Cancer's website.  Read more in this link to the event here: http://www.lbbc.org/Events/2014-09-13-Yoga-on-the-Steps-Denver

Peripheral Neuropathy: Frustrating for Survivors and Health Care Providers

Peripheral Neuropathy is all too common as a result of breast cancer treatment.  It is often described as "tingling," "burning," or "painful numbness,"  affecting fingers, feet, and toes, most commonly.   Finding a great resource for this challenging problem.  Here's a new resource on the topic that is thorough and informative.

Ocean Soul Yoga

    Claire Petretti Marti understands the many benefits of yoga and the personal impact of breast cancer.  She has brought her personal expertise regarding both into her professional career.

A brief review of her website: http://www.oceansoulyoga.com/ will inform the reader of her offerings to those with breast cancer.

Yoga and Breast Cancer

A guidebook titled, "Yoga and Breast Cancer,"  has been published by Living Beyond Breast Cancer (www.LBBC.org).    Serving as an introduction, the guidebook explains basic information, and addresses questions that women with breast cancer have about the safety of yoga concerning lymphedema and post-surgery. 

When Less is More

  In 1882, Dr. William Halsted performed the first radical mastectomy at Johns Hopkins Hospital.  The procedure was used to treat breast cancer until the 1970's, when randomized trials showed it offered no improvement in survival  over less radical measures.  The Halsted procedure involved removal of the breast, all the axillary lymph nodes, and the muscles of the chest wall, and it resulted in a profound loss of function in the affected arm.

What do Sleep, Stimulants, and Survival have in Common?

       Now those issues seem quite the disparity, but these topics are among the new items added to the online libraries recently.  Many survivors face issues of impaired sleep as well as excessive daytime fatigue.  The medical community has long been interested in understanding and treating each of these problems.  New studies might keep you awake at night.......

Could there be one issue?

        Inspired  by  a reccent  essay  in  a magazine,  I  thought of  breast cancer  survivors  who are  looking into  their future and sorting through their priorities. Could a survivor summarize her worries with a single over-riding issue that would be at the core of her long term concerns ?  Would this issue remain central  as the years went by?