Pink Ribbon Blog

     In this first blog posting of the Pink Ribbon Survivors Network, I have collected my thoughts as to five themes that can explain why we have started this website and our motivation for its success.

        1.)  Online learning certainly represents the future of dissemination of information in our society.  Thus we set out to create three online libraries dedicated to issues of breast cancer survivorship from three separate perspectives:  the survivor, the primary healthcare provider, and the cancer care professional.

        2.)  Our project makes the assumption that interested, educated persons with issues, a mission in mind, or just curiosity, will pursue self-directed education.  In an open society, persons don't want to be given simple answers, but want to learn for themselves.  Our project believes that persons will pursue self-directed education, therefore our task is the organized assembly of three online libraries devoted to these three groups interested in learning more about breast cancer survivorship.

        3.) We have observed that the different cancer care professionals ( doctors, nurses, nurse navigators, and social workers) each maintain separate clinical literature.  This isolates each professional group's observations into separate "information silos," which are not shared for a common goal of serving breast cancer survivors.  Therefore, we have created an inter-disciplinary clinical library of breast cancer survivorship issues by drawing from the literature of these different cancer care professions.  We believe that a "synergy of ideas" will be possible when observations from the perspective of different cancer care disciplines are housed on a single online library resource.  

        4.)  It is clear that an organized breast cancer survivorship library for primary health care providers needs to be available.  We note the increasing complexity of medical and psychosocial issues regarding breast cancer survivorship.  Additionally, we recognize that oncology professionals will be transitioning more care of breast cancer survivors to their primary care colleagues.  Therefore, our goal is to create a concise and comprehensive online survivorship library for the primary health care provider.  Standards of follow up care, and nationally recognized Guidelines will be an important feature of this library.

       5.)  We wish to provide a service to society as professionals and community activitists in a non-profit organization.  We pledge to avoid bias in our information, to prevent commercial interests from influencing our content, and to protect our users  from solicitation.  At a time when women play a central role in individual families and in society in general, we recognize the importance of improving the lives of breast cancer survivors through online education.

       Thank you for being part of this project through your use of this online resource.

Rob Fisher, MD  Co-Founder and  Organizational President, The Pink Ribbon Survivors Network (Rob@PinkRibbonSurvivorsNetwork.org), February, 2013.

          


Breast Cancer Survivorship Care: Witnessing a Dialogue among Cancer Physicians

       In the short history of the Pink Ribbon Survivors Network, we have witnessed a healthy discussion in the medical community, indicating the importance of Survivorship issues in our specialty's collective dialogue.  A case in point follows: 

Intimacy and Innocence after Breast Cancer

    In an era of over-emphasis on youth and sexuality, it is refreshing to read an essay of a woman's re-discovery of her sexuality.......in her mid-60's.......following two battles with breast cancer.

Breast Cancer: A Global Perspective

Pink Ribbon Survivors Network has provided educational resources around the globe.  Now, we have a better understanding of how different breast cancer diagnosis and treatment is in Third World countries, thanks to a poignant article written by Denise Grady  and published in the October 15, 2013 edition of the New York Times.

"Sex and Intimacy after Breast Cancer"

" Sex and Intimacy after Breast Cancer," is the title of a webinar hosted by The Life Beyond Breast Cancer organization, (www.LBBC.org).  This program will feature nationally-recognized authority in this field, Dr. Don Dizon, MD

Sometimes it can be as simple as "A walk in the park."

    We all hope to find some easy, simple method to lower a person's risk of developing breast cancer.  New research released this month reveals that the simple act of walking, or more vigorous activity on a daily basis can reduce a woman's risk of breast cancer.

We Thank Four Women's Magazines for Discussion of Breast Cancer in Young Women

It's not unusual for the popular media to show an interest in issues related to breast cancer as October approaches.  October is Breast Cancer Awareness Month, and we all look for a fresh angle on this important subject.

Thanks to Young Survival Coalition (www.YSC.org), we bring you four new articles about breast cancer in young women, each with an important message.  Read more to explore these articles in the October, 2013 issues of: O Magazine, Glamour, Allure, and Vogue.  

Preventative Mastectomy: Many Issues to Consider

       There is an increasing trend among young women with breast cancer to have a preventative mastectomy of the opposite breast that is unaffected by breast cancer.  How does one consider the benefit of this strategy?

Treatment for Cancer-Related Fatigue: a Measure of Progress

Certainly, cancer-related fatigue is among the leading concern of breast cancer survivors and oncology professionals involved in the ongoing care of women with breast cancer.  A new article added to each of the Pink Ribbon Survivors Network libraries provides evidence for medical treatment of this pervasive problem.